Cure Aniridia

Shine the light on Aniridia

 

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Ella's Story

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Feb 28, 2012
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Yes, we did it - thanks to each and every one of YOU!!!!!

Dr Victoria Tovell is now in post at Moorfields Eye Hospital, London with a particular research project underway for Aniridia.

http://www.moorfields.nhs.uk/Getinvolved/MoorfieldsEyeCharity/EyeCharitynews/CRzn


Oct 05, 2010
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Welcome to our blog….the latest events and information going on with our campaign will be posted here as often as we can! So far to date, we have had some inordinate efforts from people raising funds for Shine the Light on Aniridia.

Big thanks go to our unsung hero Andrew Wagner for creating a space on the web for us with our fabulous website!!! Also huge thanks to our wonderful Carol Halsall whose creative genius designed our Fairy logo and brand, all done well into the early hours of the morning and in her own time!!!

Update - October 2010


Oct 05, 2010
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Welcome to our blog….the latest events and information going on with our campaign will be posted here as often as we can! So far to date, we have had some inordinate efforts from people raising funds for Shine the Light on Aniridia.

Big thanks go to our unsung hero Andrew Wagner for creating a space on the web for us with our fabulous website!!! Also huge thanks to our wonderful Carol Halsall whose creative genius designed our Fairy logo and brand, all done well into the early hours of the morning and in her own time!!!

Update - October 2010


Jun 23, 2010
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I fully intend to write our story and hope it helps you out if you need pointers on where to go, if you have a poorly child or know someone who does - right now I could do with a tape recorder and someone to write it all down for me (any takers?!), that's the joys of 2 children, your own business and home to run.

So I will post the treatment Ella has been through, what we have found helps and all other relevant useful information for you.

Just bear with me a little longer!


Jun 23, 2010
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One of the hardest things to comprehend with a child with visual impairment if you yourself can see perfectly, is what toys will they like or need!

We would suggest you contact Aniridia Network UK as they are specialists in this field and have lots of resources available and answer all questions!


Jun 22, 2010
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Big thanks go to Julia Wilson and Jane MacHugh for completing the Alnwick Triathalon in aid of our campaign....Months of training in the saddle and the pool culminated in them all completing a huge effort and raising money which is still being counted and coming in....more later!


Jun 22, 2010
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We plan to do some more fundraising of course and we WILL reach our target! Later on this summer, we hope to put together a Fairies and Pirates Tea Party in Alnmouth and also a hog roast and music event.

Ella’s Daddy will be doing a challenge in October with his trusty bike, and anyone else wishing to join in!! Details to follow soon…..


Jun 22, 2010
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Camilla Loughton, a great family friend chose to cycle 100 miles from Chadlington in the Cotswolds (quite hilly!) to Staffordshire for the campaign and raised a huge £618 and managed to still smile at the end of a long and tough ride!


Jun 22, 2010
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Rainbow Day Nursery in Alnwick, where Ella attends, chose the campaign for their annual sponsored toddle and so far to date have raised £1125 with those little feet and legs toddling hard through Hulne Park! The staff at Rainbow threw an amazing feast afterwards and gave out medals to all the children, huge thanks to Lisa, Kim and the staff who made the day so much fun and to all those who took part and those who donated.


Jun 22, 2010
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Thompson Opticians very kindly offered to support our campaign after reading about it in the Journal newspaper. So far they have raised £1523.46 combined with Jane Hately completing the Northern Rock Cycle Challenge and Barbara Pilkington running the aerobathon at the Newcastle Centre for Sport. Marion Fleming General Manager at Thompson Opticians contacted us to let us know they had put collection boxes in all of their 27 branches across the North East! A superb and very kind effort, which is much appreciated!


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