Cure Aniridia

Shine the light on Aniridia

 

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Ella's Story

Shine the light on Aniridia
Category >> Expert Advice
Apr 12, 2011
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Yes soon we will have more information on this via Aniridia Network UK - it is a fabulous signing technique easily learned (more so than Makaton I find personally) and specifically takes into account low vision, blindness or variable vision (like Aniridia).

Ella has responded very well to the signing as it allows for a child's own signs to be used as a starting point - you can flex the signing you are teaching them to enhance their understanding and vocabulary around those signs they probably already do.

Mary Lee from the Royal Blind School in Edinburgh is hoping to offer us some more advice and answer questions at ANUK.


Oct 12, 2010
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Ken NischalQ:  What routine eye checks are done after the birth of a baby?


A:  All children should have their eyes checked, usually by a paediatrician or senior nurse, to make sure that they have a normal red reflex in each eye. This means that the media of the eye (the cornea-window of the eye; and lens, are clear). In aniridic children it often appears as though they have 'big' pupils which can be misleading. Nystagmus ('wobbly eyes') which can be present in eyes with Aniridia is not usually present at birth.

Q: If you are not sure about your child opening their eyes or closing them in bright light obviously, what should you do?

A:  Seek an opinion from a paediatric ophthalmologist. This is best done by going to your GP and expressing your concerns.



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