Sorry we have been out of touch for so long! Lots has been happening in the campaign and Ella's daily life!
So a quick update for you, she had raised eye pressure in her right eye in January 2011 so we had to go back to Great Ormond Street and see the fabulous Mr Nischal. He checked her eyes under anaesthetic (EUA) and said prior to this that if she needed a 'goniotomy' to relieve the pressure in the right eye, he would go ahead and do this at the same time.
Sure enough she did require the goniontomy and is now only the third aniridic that he has ever performed this operation on. This is owing to the controversy surrounding such a procedure on an eye where there is no iris present - which stabilises the eye. However, we knew we were in the best hands possible and that procedure versus having shunts fitted in Ella's eyes was much more preferable.