Cure Aniridia

It's been a while since we posted - sorry to all our followers! Life has been busy but Ella is doing very well and had good news about her eyes recently with pressure being an all time low.

We have a fantastic event coming up in August this year.....The RideLondon100 event has been taken on by The Fairy Queen Dream Team:

Ella's Dad, James plus her godfather Richard Gribbin, Samuel Sweet, Taner Dedezade, Ben Sayles, Jordan Quick, Josef Quick, Simon Freer, Simon Giles and Henri Black  will head up the event and cycle 100 miles to raise money for the 'Project Fairy Queen' Aniridia Research being conducted at Moorfields Eye Hospital in London under Dr Julie Daniels.

Sunday 4 August 2013

'Last Sunday we held our annual Junior Championships in which 80 of our students aged from 5 years to 14 years competed against each other in three categories: Kata, Kumite and Ground Fighting.

It was great to see so many students having a go and showing such lovely spirit, I hope everyone had a good day. A massive thank you to all the instructors / senior grade students who helped out on the day. We managed to raise an impressive £450 for the charity – the Moorfields Eye Hospital, well done and thank you!'

Sensei Virginia Richardson, CDMA

http://www.candomartialarts.co.uk/ - Welcome to Can Do Martial Arts®. The only Karate and Combined Martial Arts Academy in Oxfordshire. Train with the best martial artists available who are fully qualified as well as experienced instructors and competitors. Can Do Martial Arts promotes strong family values including respect, responsibility, self control and discipline as well as goal setting and achievement skills. These values are incorporated into all our classes.

Yes, we did it - thanks to each and every one of YOU!!!!!

Dr Victoria Tovell is now in post at Moorfields Eye Hospital, London with a particular research project underway for Aniridia.

http://www.moorfields.nhs.uk/Getinvolved/MoorfieldsEyeCharity/EyeCharitynews/CRzn

Ella started at Northern Counties school in September 2011 and this is an amazing step in the RIGHT direction for her!! A day filled with the right kind of approach:

Learning

Development

Have a look at these websites for some great ideas for toys for VI or sensory impairments:

Spacekraft 

Disabled Living Foundation - a new site for help in all areas from toys to children's needs, funding, grants, equipment....

Rebecca Young and Andrew Tate from Alnwick, contacted us after hearing about the campaign via Duchess Community High School in Alnwick. They asked if they could climb Ben Nevis for Shine the Light on Aniridia to help.....we were SO touched!!

They completed their amazing challenge at the end of August and have been collecting in funds for their feat.

We can't begin to thank them enough for their kindness and generosity - truly they have been amazing.

St Michael and All Angels Church ran a children's fun and fitness day recently with the youth group 'Metal' and raised a huge £125! The event was fantastic with swimming, exercise routines and lots of fun!

The Moore family kindly gave the use of their family pool and garden and the Church ladies provided a wonderful feast of hot food and strawberry cream teas.

Fairy Queen HQ would like to say a huge thank you for all the work the Church have put into raising continually for the campaign and a special thank you to all the young people involved in the fitness event - you are stars!!

The Amazing Mums at Cargilfield Prep School in Edinburgh hosted a fabulous dinner and cocktail evening to 'cast a little magic and dine' on Wednesday 24th August 2011 in aid of the Shine the Light on Aniridia Campaign.

It was a night to remember.....raising nearly £10,000!!!!!!!!!

Everyone here at Fairy Queen HQ would like to shout out a HUGE thank you for the selfless efforts and kindness of all the Mums involved, who have taken our campaign to heart. And also to Davina Richardson, amazing sister and Aunty for everything she did!!!

http://www.journallive.co.uk/north-east-news/todays-news/2011/06/17/charity-to-help-ella-chapple-see-again-nears-its-target-61634-28893136/

Karen Wilson has supported the campaign for over a year now, regularly writing pieces that have inspired and touched others. We are thrilled with the latest coverage of the campaign, and the Garden Party and are now so close to our target....

The Garden Party on Saturday 21st May 2011 at Acton House in Felton, Northumberland so kindly hosted by Eileen and Alan Ferguson and organised with St Michael and All Angels Church Mission Group, was a HUGE success raising over £13,000 on the day.

We were so honoured to have Professor Julie Daniels at the event all the way from Moorfields Eye Hospital in London and to hear her speak about the research that she and her team will embark on for Aniridia. It was so fantastic to have her there as she is the person who will be in the actual laboratory!

It was a wonderful day and one to remember with 'Pig and Pimms',  Jazz music by Trevor Snowdon, a bouncy castle, treasure hunt, plants donated by Alnwick Garden, coffee by    Mocha Mondo, facepainting from Atmosphere, ice cream by Morwick Dairy and magic for children!!