Cure Aniridia

Shine the light on Aniridia

 

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Ella's Story

Shine the light on Aniridia
Jun 16, 2014
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THE Fairy Queen Dream Team rides again......for the second year running the amazing cycling dream team rides the Ride London 100 event - 100 miles through Surrey and on some tough inclines with those Surrey Downs hills...

This year the team is 20 strong with men and women pitting their strength and support towards raising funds critical to keep up the work at Moorfield's Eye Hospital and to support the Fairy Queen and those in her shoes. Not withstanding their dashing pink inspired cycling outfits....

Last year the team raised £8,000 and donated £1,000 to ANUK who support and help families in the UK and abroad affected by Aniridia.


Jun 16, 2014
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So the Fairy Queen had a very tricky ride towards the end of 2013 and the start of 2014.

Unfortunately she had to change school, things just were not working! And during this inordinately stressful time for her, she detached both retinas.

After 4 operations at the Newcastle Eye Centre and huge effort by her surgeons Ayad Shafiq and Roxanne Hillier, Ella's useful vision had been lost. There is some hope that eventually she may see something more than light and shapes in her right eye.


Apr 23, 2013
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It's been a while since we posted - sorry to all our followers! Life has been busy but Ella is doing very well and had good news about her eyes recently with pressure being an all time low.

We have a fantastic event coming up in August this year.....The RideLondon100 event has been taken on by The Fairy Queen Dream Team:

Ella's Dad, James plus her godfather Richard Gribbin, Samuel Sweet, Taner Dedezade, Ben Sayles, Jordan Quick, Josef Quick, Simon Freer, Simon Giles and Henri Black  will head up the event and cycle 100 miles to raise money for the 'Project Fairy Queen' Aniridia Research being conducted at Moorfields Eye Hospital in London under Dr Julie Daniels.

Sunday 4 August 2013


Feb 28, 2012
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'Last Sunday we held our annual Junior Championships in which 80 of our students aged from 5 years to 14 years competed against each other in three categories: Kata, Kumite and Ground Fighting.

It was great to see so many students having a go and showing such lovely spirit, I hope everyone had a good day. A massive thank you to all the instructors / senior grade students who helped out on the day. We managed to raise an impressive £450 for the charity – the Moorfields Eye Hospital, well done and thank you!'

Sensei Virginia Richardson, CDMA

http://www.candomartialarts.co.uk/ - Welcome to Can Do Martial Arts®. The only Karate and Combined Martial Arts Academy in Oxfordshire. Train with the best martial artists available who are fully qualified as well as experienced instructors and competitors. Can Do Martial Arts promotes strong family values including respect, responsibility, self control and discipline as well as goal setting and achievement skills. These values are incorporated into all our classes.


Feb 28, 2012
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Yes, we did it - thanks to each and every one of YOU!!!!!

Dr Victoria Tovell is now in post at Moorfields Eye Hospital, London with a particular research project underway for Aniridia.

http://www.moorfields.nhs.uk/Getinvolved/MoorfieldsEyeCharity/EyeCharitynews/CRzn


Oct 19, 2011
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Have a look at these websites for some great ideas for toys for VI or sensory impairments:

Spacekraft 

Disabled Living Foundation - a new site for help in all areas from toys to children's needs, funding, grants, equipment....


Oct 11, 2011
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Rebecca Young and Andrew Tate from Alnwick, contacted us after hearing about the campaign via Duchess Community High School in Alnwick. They asked if they could climb Ben Nevis for Shine the Light on Aniridia to help.....we were SO touched!!

They completed their amazing challenge at the end of August and have been collecting in funds for their feat.

We can't begin to thank them enough for their kindness and generosity - truly they have been amazing.


Jul 20, 2011
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St Michael and All Angels Church ran a children's fun and fitness day recently with the youth group 'Metal' and raised a huge £125! The event was fantastic with swimming, exercise routines and lots of fun!

The Moore family kindly gave the use of their family pool and garden and the Church ladies provided a wonderful feast of hot food and strawberry cream teas.

Fairy Queen HQ would like to say a huge thank you for all the work the Church have put into raising continually for the campaign and a special thank you to all the young people involved in the fitness event - you are stars!!


Jul 12, 2011
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The Amazing Mums at Cargilfield Prep School in Edinburgh hosted a fabulous dinner and cocktail evening to 'cast a little magic and dine' on Wednesday 24th August 2011 in aid of the Shine the Light on Aniridia Campaign.

It was a night to remember.....raising nearly £10,000!!!!!!!!!

Everyone here at Fairy Queen HQ would like to shout out a HUGE thank you for the selfless efforts and kindness of all the Mums involved, who have taken our campaign to heart. And also to Davina Richardson, amazing sister and Aunty for everything she did!!!


Jun 17, 2011
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http://www.journallive.co.uk/north-east-news/todays-news/2011/06/17/charity-to-help-ella-chapple-see-again-nears-its-target-61634-28893136/

Karen Wilson has supported the campaign for over a year now, regularly writing pieces that have inspired and touched others. We are thrilled with the latest coverage of the campaign, and the Garden Party and are now so close to our target....

 


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Moorfields Eye Charity is a charitable company limited by guarantee and
registered in England and Wales.
charity registration no. 1140679

Registered office: 162 City Road, London EC1V 2PD. Registered No: 7543237