Cure Aniridia

Ella started at Northern Counties school in September 2011 and this is an amazing step in the RIGHT direction for her!! A day filled with the right kind of approach:

Learning

Development

Have a look at these websites for some great ideas for toys for VI or sensory impairments:

Spacekraft 

Disabled Living Foundation - a new site for help in all areas from toys to children's needs, funding, grants, equipment....

Rebecca Young and Andrew Tate from Alnwick, contacted us after hearing about the campaign via Duchess Community High School in Alnwick. They asked if they could climb Ben Nevis for Shine the Light on Aniridia to help.....we were SO touched!!

They completed their amazing challenge at the end of August and have been collecting in funds for their feat.

We can't begin to thank them enough for their kindness and generosity - truly they have been amazing.

St Michael and All Angels Church ran a children's fun and fitness day recently with the youth group 'Metal' and raised a huge £125! The event was fantastic with swimming, exercise routines and lots of fun!

The Moore family kindly gave the use of their family pool and garden and the Church ladies provided a wonderful feast of hot food and strawberry cream teas.

Fairy Queen HQ would like to say a huge thank you for all the work the Church have put into raising continually for the campaign and a special thank you to all the young people involved in the fitness event - you are stars!!

The Amazing Mums at Cargilfield Prep School in Edinburgh hosted a fabulous dinner and cocktail evening to 'cast a little magic and dine' on Wednesday 24th August 2011 in aid of the Shine the Light on Aniridia Campaign.

It was a night to remember.....raising nearly £10,000!!!!!!!!!

Everyone here at Fairy Queen HQ would like to shout out a HUGE thank you for the selfless efforts and kindness of all the Mums involved, who have taken our campaign to heart. And also to Davina Richardson, amazing sister and Aunty for everything she did!!!

http://www.journallive.co.uk/north-east-news/todays-news/2011/06/17/charity-to-help-ella-chapple-see-again-nears-its-target-61634-28893136/

Karen Wilson has supported the campaign for over a year now, regularly writing pieces that have inspired and touched others. We are thrilled with the latest coverage of the campaign, and the Garden Party and are now so close to our target....

 

The Garden Party on Saturday 21st May 2011 at Acton House in Felton, Northumberland so kindly hosted by Eileen and Alan Ferguson and organised with St Michael and All Angels Church Mission Group, was a HUGE success raising over £13,000 on the day.

We were so honoured to have Professor Julie Daniels at the event all the way from Moorfields Eye Hospital in London and to hear her speak about the research that she and her team will embark on for Aniridia. It was so fantastic to have her there as she is the person who will be in the actual laboratory!

It was a wonderful day and one to remember with 'Pig and Pimms',  Jazz music by Trevor Snowdon, a bouncy castle, treasure hunt, plants donated by Alnwick Garden, coffee by    Mocha Mondo, facepainting from Atmosphere, ice cream by Morwick Dairy and magic for children!!

Gelateria Danieli (in Richmond, London) owner Bridget Hunt has created a 'Fairy Queen' Ice cream to raise funds for the Shine the Light on Aniridia Campaign! 

The unqiue flavour is on sale throughout the summer once a month and they have already raised £200 in one week!

Our huge thanks go to Bridget for her support and to the team at Gelateria Danieli for the kindness in supporting the campaign.

Yes soon we will have more information on this via Aniridia Network UK - it is a fabulous signing technique easily learned (more so than Makaton I find personally) and specifically takes into account low vision, blindness or variable vision (like Aniridia).

Ella has responded very well to the signing as it allows for a child's own signs to be used as a starting point - you can flex the signing you are teaching them to enhance their understanding and vocabulary around those signs they probably already do.

Mary Lee from the Royal Blind School in Edinburgh is hoping to offer us some more advice and answer questions at ANUK.

Paul Warner completed the huge London Marathon in just over 3 and a half hours - AMAZING! To raise fund for Aniridia Research and we applaud this amazing feat!! Paul and Kate's son Dominic also has Aniridia so this is a cause close to their hearts.

Paul raised well over £800 for the campaign and we thank him very much! Here's to the research beginning!